Public Use File (PUF)

A sanitized and de-identified version of a dataset made available to the public, allowing researchers and analysts to access and analyze information while protecting individual privacy.

 

De-identification:

The process of removing or modifying personal information from a dataset to prevent the identification of individuals while maintaining the utility of the data for analysis.

 

Dataset:

A collection of structured information or data that is organized and stored for analysis. In the context of PUFs, datasets often pertain to research or survey results.

 

Sanitization:

The act of cleansing and removing sensitive information from a dataset, ensuring that it complies with privacy regulations and safeguards.

 

Access Controls:

Security measures and restrictions put in place to regulate who can access, modify, or use certain information in a dataset, ensuring data integrity and privacy

 

Researcher:

An individual or professional who uses PUFs for analysis, academic research, or statistical studies while adhering to ethical guidelines and privacy regulations.

 

Data Privacy:

The protection of personal information, ensuring that sensitive data is handled and processed in a way that prevents unauthorized access or disclosure.

 

Public Health Research:

Studies and investigations conducted using PUFs to analyze health-related trends, outcomes, and disparities within a population, while respecting privacy guidelines.

 

Statistical Disclosure Control:

Methods and techniques employed to minimize the risk of revealing confidential information when publishing or sharing statistical data.

 

Data Stewardship:

The responsible and ethical management of data, including its collection, storage, analysis, and sharing, with a focus on maintaining privacy and security.

 

Informed Consent:

Permission obtained from individuals before their data is used in research or analysis, ensuring transparency and respect for participants’ autonomy.

 

HIPAA (Health Insurance Portability and Accountability Act):

Legislation in the United States that mandates the protection of individuals’ health information and sets standards for the privacy and security of electronic health records.